SCS HS HB 454 -- CANCER INFORMATION REPORTING SYSTEM

This bill revises the cancer information reporting system in
Missouri.  The Department of Health is required to establish and
maintain a cancer information reporting system which includes a
record of all Missouri cancer cases and related information of
inpatients and outpatients as a condition of receiving federal
grant funds as required by the federal Cancer Registries
Amendment Act of 1992.  The Director of the Department of Health
will establish regulations specifying the reporting of malignant
neoplasms and related information.  The regulations will provide
for the collection of data from inpatient hospital settings,
outpatient hospital settings, pathology laboratories, physician
offices, ambulatory surgical centers, residential care
facilities I and II, intermediate care facilities, skilled
nursing facilities, and free-standing cancer clinics and
treatment centers.  Currently, the department maintains records
only of hospitalized cancer cases in Missouri.

The Director of Health will establish the form and manner in
which the information will be reported.  The reported cases must
be filed with the director within 6 months of diagnosis or
treatment.  Currently, reported cases are filed within 4 months.

Administrators or designated representatives of hospitals and
related medical facilities are required to report to the
Department of Health every case of malignant neoplasm.
Attending physicians or other health care providers who diagnose
or treat a patient's malignant neoplasm are required to report
the cancer case to administrators or a designated
representative.  Physician offices are exempt from reporting
cancer cases directly referred or previously admitted to a
hospital or a related medical facility.  Currently, attending
physicians of inpatients are required to report such cases to
administrative officers.

The Department of Health is required to protect the identity of
patients, physicians, health care providers, and related medical
facilities required to report cancer cases.  The department can
disclose their identities with written consent and can request
consent for releases from patients, physicians, health care
providers, and related medical facilities if applicants
conducting worthwhile cancer research can show that the
identities are necessary.  Reports used or published by the
Department of Health are based on information obtained according
to the provisions of this bill.

The department can enter into exchange of data agreements with
other federal, state, or local government cancer registries.
The disclosure of the identity of patients, physicians, health
care providers, and related medical facilities is not required
if the agreement prevents such disclosure.

Individuals and organizations providing information or access to
information are protected from civil and criminal liability
unless the individual or organization acted in bad faith or
maliciously.

Individuals are not required to submit to a medical or health
department examination, treatment, or supervision.

HS HB 454 -- CANCER INFORMATION REPORTING SYSTEM (Carter)

This substitute revises the cancer information reporting system
in Missouri.  The Department of Health is required to establish
and maintain a cancer information reporting system which
includes a record of all Missouri cancer cases and related
information of inpatients and outpatients as a condition of
receiving federal grant funds as required by the federal Cancer
Registries Amendment Act of 1992.  The Department of Health will
establish regulations specifying the reporting of malignant
neoplasms and related information.  The regulations will provide
for the collection of data from inpatient hospital settings,
outpatient hospital settings, pathology laboratories, physician
offices, ambulatory surgical centers, residential care
facilities I and II, intermediate care facilities, skilled
nursing facilities, and free standing cancer clinics and
treatment centers.  Currently, the Department of Health
maintains records of hospitalized cancer cases in Missouri.

The director of the Department of Health will establish
regulations regarding the reporting of cases of malignant
neoplasms and relevant information.  The reported cases must be
filed with the director within 6 months of diagnosis or
treatment.  Currently, the reported cases are filed within 4
months.

Administrators or designated representatives of hospitals and
related medical facilities are required to report to the
Department of Health every case of malignant neoplasm.
Attending physicians or other health care providers who diagnose
or treat a patient's malignant neoplasm are required to report
the cancer case to administrators or a designated
representative.  Currently, attending physicians of inpatients
are required to report such cases to administrative officers.

The Department of Health is required to protect the identity of
patients, physicians, health care providers, and related medical
facilities required to report cancer cases.  The department can
disclose their identities with written consent and can request
consent for releases from patients, physicians, health care
providers, and related medical facilities if applicants
conducting worthwhile cancer research can show that the
identities are necessary.  Reports used or published by the
Department of Health are based on information obtained according
to the provisions of this substitute.

The department can enter into exchange of data agreements with
other federal, state, or local government cancer registries.
The disclosure of the identity of patients, physicians, health
care providers, and related medical facilities is not required
if the agreement prevents such disclosure.

Individuals and organizations providing information or access to
information as stated in this substitute are protected from
civil and criminal liability unless the individual or
organization acted in bad faith or maliciously.

Individuals are not required to submit to a medical or health
department examination, treatment, or supervision.

FISCAL NOTE:  No impact on state funds.

HB 454 -- CANCER INFORMATION REPORTING SYSTEM

CO-SPONSORS:  Carter, Boykins

COMMITTEE ACTION:  Voted "do pass" by the Committee on Public
Health by a vote of 13 to 0 with the recommendation that the
bill be placed on the Federal Mandate Calendar.

This bill revises provisions relating to the cancer information
reporting system in Missouri.  The Department of Health is
required to establish and maintain a cancer information
reporting system which includes a record of all Missouri cancer
cases and related information of inpatients and outpatients
diagnosed and treated in hospitals, pathology laboratories,
physician offices, ambulatory surgical centers, and free
standing cancer clinics and treatment centers.  Currently, the
Department of Health maintains records of hospitalized cancer
cases in Missouri.

The director of the Department of Health will establish
regulations regarding the reporting of cases of malignant
neoplasms and relevant information.  The reported cases must be
filed with the director within 6 months of diagnosis or
treatment.  Currently, the reported cases are filed within 4
months.

Administrators or designated representatives of hospitals and
related medical facilities are required to report to the
Department of Health every case of malignant neoplasm.
Attending physicians or other health care providers who diagnose
or treat a patient's malignant neoplasm are required to report
the cancer case to administrators or a designated
representative.  Currently, attending physicians of inpatients
are required to report such cases to administrative officers.

The Department of Health is required to protect the identity of
patients, physicians, health care providers, and related medical
facilities required to report cancer cases.  The department can
disclose their identities with written consent and can request
consent for releases from patients, physicians, health care
providers, and related medical facilities if applicants
conducting worthwhile cancer research can show that the
identities are necessary.  Reports used or published by the
Department of Health are based on information obtained according
to the provisions of this bill.

The department can enter into exchange of data agreements with
other federal, state, or local government cancer registries.
The disclosure of the identity of patients, physicians, health
care providers, and related medical facilities is not required
if the agreement prevents such disclosure.

FISCAL NOTE:  No impact on state funds.

PROPONENTS:  Supporters say that this bill would promote the
collection of epidemiological data pertaining to the incidence
of  cancer in Missouri.  The bill would also allow for the
expansion of reporting requirements for the incidence of cancer
in Missouri.  The new reporting requirements include the
diagnosis of cancer reported from in-patient facilities and out--
patient facilities as stated in the bill.

Testifying for the bill were Representatives Carter and Boykins;
and Department of Health.

OPPONENTS:  There was no opposition voiced to the committee.

Joseph Deering, Legislative Analyst

HB 454 -- Cancer Information Reporting System

Co-Sponsors:  Carter, Boykins

This bill revises provisions relating to the cancer information
reporting system in Missouri.  The Department of Health is
required to establish and maintain a cancer information
reporting system which includes a record of all Missouri cancer
cases and related information of inpatients and outpatients
diagnosed and treated in hospitals, pathology laboratories,
physician offices, ambulatory surgical centers, and free
standing cancer clinics and treatment centers.  Currently, the
Department of Health maintains records of hospitalized cancer
cases in Missouri.

The director of the Department of Health will establish
regulations regarding the reporting of cases of malignant
neoplasms and relevant information.  The reported cases must be
filed with the director within 6 months of diagnosis or
treatment.  Currently, the reported cases are filed within 4
months.

Administrators or designated representatives of hospitals and
related medical facilities are required to report to the
Department of Health every case of malignant neoplasms.
Attending physicians or other health care providers who diagnose
or treat a patient's malignant neoplasm are required to report
the cancer case to administrators or a designated
representative.  Currently, attending physicians of inpatients
are required to report such cases to administrative officers.

The Department of Health is required to protect the identity of
patients, physicians, health care providers, and related medical
facilities required to report cancer cases.  The department can
disclose their identities with written consent and can request
consent for releases from patients, physicians, health care
providers, and related medical facilities if applicants
conducting worthwhile cancer research can show that the
identities are necessary.  Reports used or published by the
Department of Health are based on information obtained according
to the provisions of this bill.

The department can enter into exchange of data agreements with
other federal, state, or local government cancer registries.
The disclosure of the identity of patients, physicians, health
care providers, and related medical facilities is not required
if the agreement prevents such disclosure.